The ALS #IceBucketChallenge
Well, I knew it would happen, eventually. I was nominated to take the #IceBucketChallenge a few days ago. I also donated to The ALS Association and created my video.
I’ve seen a lot of disturbing discussion on the ALS Challenge. A lot. People are complaining about it and cracking jokes. The truth is, there’s nothing funny about ALS even if some of the videos will make you laugh. There is one complaint that I do happen to agree with – that some people are doing the challenge for little more than self publicity and pats on the back. Cool – you just got iced! Great. Now what?
But, for everyone doing the #IceBucketChallenge wrong, there are thousands doing it right. Using the hashtags, including links to an ALS organization such as the ALSA and encouraging others to learn more about ALS, to donate and to help spread awareness to the cause. It’s working! As of today donations directly related to the #IceBucketChallenge have exceed $41 million dollars!
The One #IceBucketChallenge Video You Must Watch. Seriously. Watch it.
Learn More About ALS & The ALS Association
The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. As the preeminent ALS organization, The Association leads the way in research, patient and community services, public education, and advocacy — giving help and hope to those facing the disease. The Association’s nationwide network of chapters provides comprehensive patient services and support to the ALS community. The mission of The ALS Association is to lead the fight to cure and treat ALS through global cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
Quick Facts about ALS
- Amyotrophic lateral sclerosis (ALS), more commonly referred to as Lou Gehrig’s disease, is a progressive neurodegenerative disease that attacks nerve cells and pathways in the brain and spinal cord. When these cells die, voluntary muscle control and movement dies with them. Patients in the later stages of the disease are totally paralyzed, yet in most cases, their minds remain sharp and alert.
- Every day, an average of 15 people are newly diagnosed with ALS — more than 5,600 people per year. As many as 30,000 Americans may currently be affected by ALS. Annually, ALS is responsible for two deaths per 100,000 people.
- The average life expectancy of a person with ALS is two to five years from time of diagnosis. With recent advances in research and improved medical care, many patients are living longer, more productive lives. Half of all those affected live at least three years or more after diagnosis. About 20 percent live five years or more, and up to ten percent will survive more than ten years.
- ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. ALS can strike anyone. Every single American is threatened by this disease.
Visit http://www.alsa.org/ for more information!
Have you taken the #IceBucketChallenge ?